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RARE Revolution Magazine
@RareRevolutionM
Hi! We're @CharityDEBRA and we're taking over @RareRevolutionM's Twitter to share a bit about life with the #rare… twitter.com/i/web/status/1…
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Rare Revolution Mag
@RareRevolutionM
For patient representatives, capturing the needs of your patient community and relaying this to stakeholders can o… twitter.com/i/web/status/1…
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Rare Revolution Mag
@RareRevolutionM
You have until midnight to apply for the biggest ever training for #Duchenne & Becker MD patient advocates.
Get… twitter.com/i/web/status/1…
Get… twitter.com/i/web/status/1…
Retweet of status by @worldduchenne
Rare Revolution Mag
@RareRevolutionM
EpiCARE aims to promote #clinicalresearch. That is why we created a new webpage, to share the opportunity of colla… twitter.com/i/web/status/1…
Retweet of status by @EpiCARE_ERN
Rare Revolution Mag
@RareRevolutionM
Did you hear?
You, yes YOU, can have a direct impact on Findacure's future events & projects
From #workshops… twitter.com/i/web/status/1…
You, yes YOU, can have a direct impact on Findacure's future events & projects
From #workshops… twitter.com/i/web/status/1…
Retweet of status by @findacure_fdn
Rare Revolution Mag
@RareRevolutionM
One of the most difficult parts about my #RareDisease journey has been speaking to my children about it. … twitter.com/i/web/status/1…
Retweet of status by @RareDiseaseDad
Rare Revolution Mag
@RareRevolutionM
We have a website for patients & carers that is packed with information about aspergillosis. Including:
Types of… twitter.com/i/web/status/1…
Types of… twitter.com/i/web/status/1…
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Rare Revolution Mag
@RareRevolutionM
funding opportunity! @cziscience’s #RareAsOne call for applications will support patient-led #RareDisease organis… twitter.com/i/web/status/1…
Rare Revolution Mag
@RareRevolutionM
Our new Call for Innovative Research Projects in Advanced Therapies for Dravet Syndrome is now OPEN
Up to 120'00… twitter.com/i/web/status/1…
Up to 120'00… twitter.com/i/web/status/1…
Rare Revolution Mag
@RareRevolutionM
It only takes a minute to subscribe to our rare disease magazine
Head over to:
rarerevolutionmagazine.com
As w… twitter.com/i/web/status/1…
Head over to:
rarerevolutionmagazine.com
As w… twitter.com/i/web/status/1…
Rare Revolution Mag
@RareRevolutionM
Some anti-epileptic drug tablets are HUGE! Those who swallow them deserve a high-five for that alone! … twitter.com/i/web/status/1…
Retweet of status by @EpilepsySparks
...but wait! There's more!
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fakhright
@fakhright
astaghfirullah peng.krim guaaaaaaaa..............a *salto sambil solat*
