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SynGAP Research Fund (SRF)
@cureSYNGAP1
Congrats @AcadiaPharma for the FDA Approval of DAYBUE (trofinetide) for #RettSyndrome!
@StokeTx partnered w/ A… twitter.com/i/web/status/1…
@StokeTx partnered w/ A… twitter.com/i/web/status/1…
11 Mar 23
copy & paste +upvote -downvote Congrats @AcadiaPharma for the FDA Approval of DAYBUE™ (trofinetide) for #RettSyndrome!
@StokeTx partnered w/ A… https://t.co/inBlL8c3Jj
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SynGAP Research Fund (SRF)
@cureSYNGAP1
Roses are red
Violets are blue
Text a #RareDisease friend today
And say, "I see you."
Violets are blue
Text a #RareDisease friend today
And say, "I see you."
Retweet of status by @OnceUponAGene
09 Mar 23
copy & paste +upvote -downvote Roses are red 🌹
Violets are blue 💠
Text a #RareDisease friend today 📱
And say, "I see you." 👀
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SynGAP Research Fund (SRF)
@cureSYNGAP1
kickoff for the annual #Sprint4Syngap 5k fundraiser!! Sprint 4 Syngap will be on 4/29. If you would like to pu… twitter.com/i/web/status/1…
Retweet of status by @rachel_frayne
02 Mar 23
copy & paste +upvote -downvote 💚💙💜🦓 kickoff for the annual #Sprint4Syngap 5k fundraiser!! Sprint 4 Syngap will be on 4/29. If you would like to pu… https://t.co/PVzSF4yrsa
SynGAP Research Fund (SRF)
@cureSYNGAP1
New SYNGAP1 #SRFWebinar with Taylor Abel, MD and Monika Jones, JD
SYNGAP1 and Epilepsy SurgerySYNGAP1 and Epil… twitter.com/i/web/status/1…
SYNGAP1 and Epilepsy SurgerySYNGAP1 and Epil… twitter.com/i/web/status/1…
Retweet of status by @cureSYNGAP1
14 Feb 23
copy & paste +upvote -downvote 🎤💻 New SYNGAP1 #SRFWebinar with Taylor Abel, MD and Monika Jones, JD
🧬 SYNGAP1 and Epilepsy SurgerySYNGAP1 and Epil… https://t.co/9z6DdBdjrs
SynGAP Research Fund (SRF)
@cureSYNGAP1
#WarriorWednesday #SYNGAP1 Radek (age 3) from Biala Podlaska, Poland
“He loves cuddling, musical and talking toy… twitter.com/i/web/status/1…
“He loves cuddling, musical and talking toy… twitter.com/i/web/status/1…
25 Jan 23
copy & paste +upvote -downvote #WarriorWednesday 🧬#SYNGAP1 Radek (age 3) from 📍Biala Podlaska, Poland
“He loves cuddling, musical and talking toy… https://t.co/DJSCYsgwMg
SynGAP Research Fund (SRF) @cureSYNGAP1
@cureSYNGAP1
Farewell lunch for @Vivian_WY_Liao and @AleRossiNeuro
It has been a great pleasure having you in the dept.
Al… twitter.com/i/web/status/1…
It has been a great pleasure having you in the dept.
Al… twitter.com/i/web/status/1…
Retweet of status by @FiladelfiaGene1
29 Sep 22
copy & paste +upvote -downvote Farewell lunch for @Vivian_WY_Liao and @AleRossiNeuro 🤩
It has been a great pleasure having you in the dept. 🤗
Al… https://t.co/srOhN5LDWR
SynGAP Research Fund (SRF) @cureSYNGAP1
@cureSYNGAP1
It’s my birthday week! Send me birthday love by making a donation to @cureSYNGAP1 Why SRF? Because that’s wha… twitter.com/i/web/status/1…
Retweet of status by @caitlin_kaspar
15 Aug 22
copy & paste +upvote -downvote It’s my birthday week! Send me birthday love by making a donation to @cureSYNGAP1 💜💙💚 Why SRF? Because that’s wha… https://t.co/MFvpca09pD
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SynGAP Research Fund (SRF) @cureSYNGAP1
@cureSYNGAP1
It’s almost “Back to School” time!
Make sure your child’s #SeizureActionPlan is updated:
seizure types/descript… twitter.com/i/web/status/1…
Make sure your child’s #SeizureActionPlan is updated:
seizure types/descript… twitter.com/i/web/status/1…
Retweet of status by @TheNotoriousEEG
29 Jul 22
copy & paste +upvote -downvote It’s almost “Back to School” time! 📚
Make sure your child’s #SeizureActionPlan is updated:
✅seizure types/descript… https://t.co/V8NI1Di3oC
SynGAP Research Fund (SRF) @cureSYNGAP1
@cureSYNGAP1
#WarriorWednesday #SYNGAP1 Esme (age ) fromVirginia, USA
“When she’s tall enough I’m convinced Esme will lo… twitter.com/i/web/status/1…
“When she’s tall enough I’m convinced Esme will lo… twitter.com/i/web/status/1…
22 Jun 22
copy & paste +upvote -downvote #WarriorWednesday 🧬#SYNGAP1 Esme (age 3️⃣) from📍Virginia, USA 🇺🇸
“When she’s tall enough I’m convinced Esme will lo… https://t.co/AVA45u0CA3
SynGAP Research Fund (SRF) @cureSYNGAP1
@cureSYNGAP1
@cureSYNGAP1 wishes all dads a #HappyFathersDay pic.twitter.com/1pXuNFo6DG
19 Jun 22
copy & paste +upvote -downvote @cureSYNGAP1 wishes all dads a #HappyFathersDay ☀️ https://t.co/1pXuNFo6DG
SynGAP Research Fund (SRF) @cureSYNGAP1
@cureSYNGAP1
EPIGENE network: effort to improve diagnosis of monogenic epilepsies pubmed.ncbi.nlm.nih.gov/35091117/
Top Diagnostics… twitter.com/i/web/status/1…
Top Diagnostics… twitter.com/i/web/status/1…
21 Apr 22
copy & paste +upvote -downvote EPIGENE network: 🇫🇷 effort to improve diagnosis of monogenic epilepsies https://t.co/AZJ880gzh4
Top 🔟 Diagnostic🧬s… https://t.co/QOQ88HWqIu
...but wait! There's more!
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fakhright
@fakhright
astaghfirullah peng.krim guaaaaaaaa..............a *salto sambil solat*
14 Jan 13
copy & paste +upvote -downvote astaghfirullah peng.krim guaaaaaaaa..............a *salto sambil solat* 🙈🙈🙊