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Effie Parks
@OnceUponAGene
Roses are red
Violets are blue
Text a #RareDisease friend today
And say, "I see you."
Violets are blue
Text a #RareDisease friend today
And say, "I see you."
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Effie Parks
@OnceUponAGene
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Effie Parks
@OnceUponAGene
Roses are red
Violets are blue
You gave a diagnosis of #CP
But that's not really true.
#GeneticTesting… twitter.com/i/web/status/1…
Violets are blue
You gave a diagnosis of #CP
But that's not really true.
#GeneticTesting… twitter.com/i/web/status/1…
Effie Parks
@OnceUponAGene
@OnceUponAGene @BeyondtheDx What?!? That’s amazing! We will def pop down to NYC for some selfies
Retweet of status by @DNATodayPodcast
Effie Parks
@OnceUponAGene
@atrevino How do I count the ways?!
He moved countries to save his child
Got approval from the Pope on a medic… twitter.com/i/web/status/1…
He moved countries to save his child
Got approval from the Pope on a medic… twitter.com/i/web/status/1…
Effie Parks
@OnceUponAGene
Lucas
The longest night. The solstice. He would have been 14. Forever 11. Missed. Loved. Celebrated. Always.
A… twitter.com/i/web/status/1…
The longest night. The solstice. He would have been 14. Forever 11. Missed. Loved. Celebrated. Always.
A… twitter.com/i/web/status/1…
Effie Parks
@OnceUponAGene
My take
Standard pediatric physical therapy is not for kids who have severe disabilities. Especially those w/… twitter.com/i/web/status/1…
Standard pediatric physical therapy is not for kids who have severe disabilities. Especially those w/… twitter.com/i/web/status/1…
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Effie Parks
@OnceUponAGene
New PR from #SRF: @UFDTech Hosts 2nd Annual Cannonball for the Cure Charity Stream to Benefit SRF
… twitter.com/i/web/status/1…
… twitter.com/i/web/status/1…
Retweet of status by @cureSYNGAP1
Effie Parks
@OnceUponAGene
Oy!
Happy first day #FordLightning
Teach the kids what they can only learn from kids like you!
#RareDisease… twitter.com/i/web/status/1…
Happy first day #FordLightning
Teach the kids what they can only learn from kids like you!
#RareDisease… twitter.com/i/web/status/1…
Effie Parks
@OnceUponAGene
Up until 2 mths ago my son only said 2 words, "mama & dada"
We his dosage of trihexyphenadyl a couple months ago… twitter.com/i/web/status/1…
We his dosage of trihexyphenadyl a couple months ago… twitter.com/i/web/status/1…
Effie Parks
@OnceUponAGene
My son Ford is one of my greatest teachers.
Especially when things feel harder than usual.
Just look at him. … twitter.com/i/web/status/1…
Especially when things feel harder than usual.
Just look at him. … twitter.com/i/web/status/1…
...but wait! There's more!
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fakhright
@fakhright
astaghfirullah peng.krim guaaaaaaaa..............a *salto sambil solat*
