12.
Effie Parks
@OnceUponAGene
Airline Hack for Traveling with wheelchairs : There is NO Hack.
PRAY PRAY PRAY the airline treats your mobility… twitter.com/i/web/status/1…
PRAY PRAY PRAY the airline treats your mobility… twitter.com/i/web/status/1…
Retweet of status by @NeenaNizar
09 Jun 22
copy & paste +upvote -downvote Airline Hack for Traveling with wheelchairs ♿️: There is NO Hack.
PRAY PRAY PRAY the airline treats your mobility… https://t.co/eGT3HSj1LY
13.
Effie Parks
@OnceUponAGene
Hey Boston friends
The Disorder Channel has a billboard up this month in Cambridge above Bertucci's at Main St /… twitter.com/i/web/status/1…
The Disorder Channel has a billboard up this month in Cambridge above Bertucci's at Main St /… twitter.com/i/web/status/1…
17 May 22
copy & paste +upvote -downvote Hey Boston friends 🚨
The Disorder Channel has a billboard up this month in Cambridge above Bertucci's at Main St /… https://t.co/wDHD2GSjmb
14.
15.
16.
17.
18.
Effie Parks
@OnceUponAGene
@Purrfectly_Rare I'm sorry to hear that.
Love you, Marni!
Love you, Marni!
15 Apr 22
copy & paste +upvote -downvote @Purrfectly_Rare I'm sorry to hear that.
Love you, Marni!
💙
Effie Parks
@OnceUponAGene
Honored to be named as @ThePodcastMag
40 Under 40 in Podcasting!
"Effie brings critical perspective and inspir… twitter.com/i/web/status/1…
40 Under 40 in Podcasting!
"Effie brings critical perspective and inspir… twitter.com/i/web/status/1…
04 Apr 22
copy & paste +upvote -downvote Honored to be named as @ThePodcastMag
40 Under 40 in Podcasting!
🌟🌟🌟
"Effie brings critical perspective and inspir… https://t.co/MJTGXehztc
Effie Parks
@OnceUponAGene
Love this! So needed #HIMSS22 twitter.com/onceuponagene/…
Retweet of status by @HITeaWithGrace
17 Mar 22
copy & paste +upvote -downvote Love this! So needed 👏 #HIMSS22 https://t.co/Twccnqj2gV
Effie Parks
@OnceUponAGene
For the #RareDisease advocacy groups who use PR companies to get patient stories on podcasts
11 Mar 22
copy & paste +upvote -downvote For the #RareDisease advocacy groups who use PR companies to get patient stories on podcasts 🧵
Effie Parks
@OnceUponAGene
We are back with new episodes of Once Upon A Gene TV on @DisorderRare Guest, Jennifer Siedman, joins us to talk… twitter.com/i/web/status/1…
Retweet of status by @OnceUponAGene
07 Feb 22
copy & paste +upvote -downvote We are back with new episodes of Once Upon A Gene TV on @DisorderRare 📺 Guest, Jennifer Siedman, joins us to talk… https://t.co/CLmXNQaMGK
19.
20.
21.
Effie Parks
@OnceUponAGene
This is so important. Often one clinical label sticks stronger, then assumptions follow based on that label, wh… twitter.com/i/web/status/1…
Retweet of status by @kaaldinger
16 Dec 21
copy & paste +upvote -downvote 👏🏻This is so important.👏🏻 Often one clinical label sticks stronger, then assumptions follow based on that label, wh… https://t.co/wSk3oL9utt
Effie Parks
@OnceUponAGene
Yesterday, my day started with such amazing light despite the Seattle gray. I spent the morning with the amazing… twitter.com/i/web/status/1…
Retweet of status by @kaaldinger
28 Oct 21
copy & paste +upvote -downvote Yesterday, my day started with such amazing light despite the Seattle ☁️gray. I spent the morning with the amazing… https://t.co/YAAOaHXhfI
Effie Parks
@OnceUponAGene
Another day where I’m left feeling so inspired and empowered by the #RareDisease community. Everyone has a story… twitter.com/i/web/status/1…
Retweet of status by @RichardElles
13 Oct 21
copy & paste +upvote -downvote Another day where I’m left feeling so inspired and empowered by the #RareDisease 🧬 community. Everyone has a story… https://t.co/kHvYm0KOwh
...but wait! There's more!
12.
fakhright
@fakhright
astaghfirullah peng.krim guaaaaaaaa..............a *salto sambil solat*
14 Jan 13
copy & paste +upvote -downvote astaghfirullah peng.krim guaaaaaaaa..............a *salto sambil solat* 🙈🙈🙊